Yes! Lots of folks with chronic illness find themselves in a limbo where they can’t get decent treatment or often precise diagnosis. Crowdsourcing relief has mixed results, but in such circumstances reports of rigorous trial and error with various approaches is sometimes helpful in the absence of the sort of care a lot of Americans now can’t even hope for. I know this because I’ve been there. CIDP here since 2010.
Crowdsourcing medical assistance is entirely valid, as long as you’re also seeking professional help. Medicine just doesn’t have all the answers, and sometimes “this works for me” is the best advice you can get when there’s nowhere else to turn.
I’m reminded of that old joke:
What do you someone who graduated bottom of their class at medical school?
Yes! Lots of folks with chronic illness find themselves in a limbo where they can’t get decent treatment or often precise diagnosis. Crowdsourcing relief has mixed results, but in such circumstances reports of rigorous trial and error with various approaches is sometimes helpful in the absence of the sort of care a lot of Americans now can’t even hope for. I know this because I’ve been there. CIDP here since 2010.
What is CIDP?
Crowdsourcing medical assistance is entirely valid, as long as you’re also seeking professional help. Medicine just doesn’t have all the answers, and sometimes “this works for me” is the best advice you can get when there’s nowhere else to turn.
I’m reminded of that old joke:
What do you someone who graduated bottom of their class at medical school?
“Doctor.”
Chronic Inflammatory Demyelinating Polyneuropathy.
Agreed.